Supported seating is usually not used as they are only able to sit up for a few seconds. They usually require two staff members to assist with hoisting. It is more beneficial for them to be cared for while resting comfortably in bed.
A lack of motor control reduces circulation and most people functioning within ACL 1.0 are cold. Warmth is comforting and can be provided simply by rubbing their hands, arms and face. Some family members do it naturally and others appreciate being told to go ahead. Showing them how to do a gentle message that prevents damage to fragile skin is something positive for them to do when they come to visit their loved one.
The positive responses with ACL 1.0 are easily seen as a sense of comfort. From a humanitarian perspective, the interpretation can be a sense of peace. The important experience is that the person is still with us and deserves to have a peaceful, comforting day.
With the current system of care, people functioning within ACL 1.0 sleep most of the time. How often and how long comforting sessions would be beneficial is unknown.
Being able to keep the person comfortable is important to the staff members. Documentation on how to keep the person comfortable is appreciated by all staff members.
The person who is still with us easily becomes an unknown, breathing mass that is taking up space within ACL 1.0. Communications should focus on educating everyone about the person who appreciates comfort and peaceful sleep.
Reactions to strong noxious tactile cues include pressing a sharp point to the finger tips and applying ice to the face and hands. Rapid withdrawal is expected.
Responses to moderately painful fingers are usually verbal because voluntary motor control of the hands is usually limited to withdrawal from serious pain. Serious pain should, of course be avoided.